Project: Every Child for Younger Patients With Cancer

Titre officiel

The Project: EveryChild Protocol: A Registry, Eligibility Screening, Biology and Outcome Study

Sommaire:

Cette étude de recherche porte sur un projet destiné aux jeunes enfants atteints de cancer, connu sous le nom de Project: Every Child. Elle a pour but de recueillir des renseignements sur la santé de jeunes patients atteints de cancer au fil du temps en vue d’aider les médecins à trouver de meilleures méthodes de traitement et de meilleurs soins continus.

Description de l'essai

Primary Outcome:

  • Preservation of clinically annotated, adequately preserved biological specimens for future research efforts
PRIMARY OBJECTIVES:
I. To maintain a Childhood Cancer Registry for infants, children, adolescents, and young adults with cancer. II. To utilize clinical and biological data to help determine eligibility or stratification, based on childhood cancer disease classification schemas, for potential enrollment of research subjects onto Children's Oncology Group (COG) therapeutic clinical trials. III. To develop a well annotated childhood cancer biobank for current and future research through the collection of biospecimens (at diagnosis, time of progression, time of recurrence and/or post-mortem), including tumour, host and when feasible parental germline deoxyribonucleic acid (DNA); and key clinical data, including presentation, diagnostic, staging, summary treatment, and outcome information, from every child diagnosed with cancer at COG institutions. IV. To allow use of registry data for permission to be contacted in the future to consider participating in non-therapeutic and prevention research studies involving the child or their parents. OUTLINE:

Patients undergo medical data review to create a Childhood Cancer Registry. Patients also undergo collection of bio-specimen samples (e.g., tissue, blood, bone marrow, plasma, serum, buccal cells, saliva, cerebrospinal fluid, or urine).

Voir cet essai sur ClinicalTrials.gov

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Ressources

Société canadienne du cancer

Ces ressources sont fournies en partenariat avec Société canadienne du cancer